P Moons

..This study therefore assessed the quality of life and perceived health of adults with congenital heart disease and compared these two measures with those reported by healthy control subjects...

..To investigate the birth prevalence, treatment modalities and short-term survival of children with congenital heart disease who were born in 2002...

....

..It is argued that transition programs that inform patients about the rationale for ongoing follow-up and that teach them how to navigate the medical system can avoid another lost generation...

..To compare the abilities of four different screening tools to predict return visits of older persons after they have been discharged from the emergency department (ED)...

..This hypothesis needs to be tested in long-term longitudinal studies. If such studies can confirm the hypothesis, SOC can be an important target for interventions in childhood to improve patients' quality of life during adulthood...

..We surveyed the involvement, education and activities of nurse specialists in the care for adults with congenital cardiac anomalies in Europe...

..The aim of this report is to describe the delivery of care in Europe for adults with congenital cardiac anomalies...

..Furthermore, our findings can assist researchers in developing more rigourous quality-of-life research...

..Although summer and sports camps for children with congenital heart disease are organized in many countries and regions, empirical data on the effects of such camps is limited...

..Therefore, this study investigated sexual functioning in adults with congenital heart disease and compared this with that of matched, healthy control subjects...

..The aims of this study are therefore to describe the prevalence of risk factors for coronary heart disease in a large sample of adults with congenital cardiac anomalies, and compare this with the prevalence in the general population...

..The purpose of the study was to assess the profile of adult patients with congenital heart disease who reported a good, moderate, or poor quality of life...

..To evaluate the predictive validity of the self-extubation risk assessment tool (SERAT) in intensive care patients...

..To investigate the expectations and experiences of adolescents on transferring from a pediatric cardiology program to an adult congenital heart disease program...

..We also compared their survival with that of CHD patients born in earlier eras and evaluated survival as a function of the type of heart defect...

..We investigated the level of knowledge of hematological management of patients with Eisenmenger syndrome among general cardiovascular nurses and nurses who specialize in congenital heart disease (CHD)...

..In this article, we describe the epidemiology, outcome, pathophysiology, clinical presentation, medical management and counseling issues of this condition...

..Hence, patient-reported outcomes should be a priority on the agenda for research in the domain of congenital cardiac disease...

....

..In order to reduce risks for unfavorable outcomes, pregnant women need to adopt specific health behaviors. We investigated the pregnancy-related health behavior of women with congenital heart disease during their pregnancy...

..Such patients, therefore, are often presumed to be high users of resources for health care. Information on utilization of resources in adults with congenital heart disease, however, is scarce...

..Although further research is needed, we recommend the participation in sport activities by children with heart defects, and more specifically their participation in sports camps...

..The aim of this study is to investigate the predictive validity of 5 screening tools with respect to functional decline in older persons discharged from the Accident & Emergency Department...

..These findings document the validity of the "Modified Transplant Symptom Occurrence and Symptom Distress Scale" as an instrument to measure symptom experience with immunosuppressive drugs...

..In particular, an advanced practice nurse seems to be pre-eminent to optimise illness management of adult patients with congenital heart disease...

..To assess how much adults with congenital heart disease understand about their heart defect, its treatment, and the preventive measures necessary to avoid complications...

..To explore whether the severity of congenital heart disease is associated with the quality of life and perceived health status of adult patients...

..This study aimed to examine aspects of validity, reliability and responsiveness of the SEIQoL-DW on data obtained in adults with congenital heart disease, by using the new standards of psychological testing...

..The aims of this study were 1) to identify the settings in which JIA patients are followed up after leaving paediatric rheumatology, and 2) to compare the clinical profile of patients in different settings...

..Moreover, it determined the perceived impact of the disease on the patient's daily life. CONCLUSION: This study shows that normalisation is the most important process when dealing with patients suffering from a congenital heart disease...

..Although life expectancy is good, previous studies have demonstrated limitations in exercise capacity. To what extent these limitations affect day-to-day functioning of the patients is not yet known...

..Comparison of the first-generation Minimum Geriatric Screening Tools (MGST) and the third-generation interRAI Acute Care (interRAI AC)...

..Sexual counselling is therefore indispensible. Culture is an identified barrier to talking about sex, but research is lacking on whether and how culture influences nurses in providing sexual counselling...

..Therefore, we wanted to study the prevalence of migraine in female patients with coarctation of the aorta (CA) and to determine predictive variables for migraine in this specific population...

..The MTSOSD-59R is an instrument with established content and discriminant validity for assessing transplant patients' symptom experience of side-effects stemming from currently available immunosuppressive regimens...

..Health-care providers working in pediatric cardiology should make their transfer policies explicit and transition programs ought to be developed...

..This study aimed to describe the profile of patients receiving discharge management in Flemish psychiatric hospitals as well as to analyse the discharge management indicators of these hospitals on micro and meso level...

..This present study was designed to compare symptoms, functional status, quality of life, and perceived health after perineal colostomy and appendicostomy with that after abdominal colostomy...

..To describe the beliefs and attitudes of intensive care unit (ICU) nurses toward visiting, visiting hours, and open visiting policies in critical care settings...

..Appropriate communication between health care providers and patients, a sound assessment of functional status and cognitive ability, and specific attention to verbal and written discharge guidelines are indispensable...

..Therefore, interventions, including the screening and treatment for depression and the addressing of gender-specific issues, can enhance quality of life...

..The present study compared the Vortex port to the classically shaped Celsite port with regards to functional complications...

..Such instruments should be widely applicable in diverse patient populations and their validity should be established. The aim of this study was to explore the validity of the EQ-5D in renal transplant patients...

..This multicenter study assessed the perceived health status, functional abilities, and quality of life in long-term survivors of the Mustard or Senning operation...

..Therefore, this study examined individual quality of life in adults with congenital heart disease and explored potential differences with those reported by matched, healthy control subjects...

..CONCLUSIONS: This implementation project showed that a discharge planning intervention can reduce institutionalization rates of elderly patients in real-life settings...

..To assess long term outcome of patients who underwent Mustard or Senning repair for transposition of the great arteries up to 30 years earlier...

..The scientific community should take up this conceptual discussion in order to make the concept of quality of life less ambiguous...

..However, quality of life can be an ambiguous concept that is hindered by methodological weaknesses, a situation that can prevent the drawing of firm conclusions...

..To develop a risk stratification scheme for deliberate self-extubation in intensive care patients...

..International guidelines indicate that advanced practice nurses are key in developing and implementing patient education programs during the transition from pediatric cardiology to adult-centered health care...

..Some patients required intervention, but in others, spontaneous closure occurred. Electrocardiographic and structural changes were noticed, for which the clinical significance needs to be determined...

..We aimed to test validity, reliability and responsiveness of a Dutch version of a prolapse quality-of-life questionnaire (P-QoL)...

..To examine how geriatric evaluation and management units (GEMUs) are organized and to examine the effectiveness of admission on a GEMU...

..Limited data exist on the efficacy and safety of home intravenous antibiotic (IV-AB) therapy for pulmonary infection specifically in children with cystic fibrosis (CF)...

..Corticosteroid (CS) therapy is effective in many patients with immune thrombocytopenic purpura (ITP), although it is associated with adverse effects...

..From a previous survey of cardiac nurses attending a scientific conference, we learned that these nurses adopted a healthier lifestyle than the general population...

..42). CONCLUSION: This is the first study showing differences in prevalence of nonadherence between European and US patients and among European patients. Further research should aim at unraveling the dynamics explaining these differences...

..Given these clinically significant observations, there appears to be a role for nurse-led, multidisciplinary, rehabilitation teams that target clinically vulnerable patients whose symptoms remain refractory to standard medical care...

....

..CONCLUSION: Guidelines have an important role in the actual clinical care of adults with CHD. However, large outcome studies are needed to develop more precise guidelines...

..The aim of this study was to examine personal awareness of CVD risk among a cohort of cardiovascular nurses attending a European conference...

..In particular, this aspect has been under-investigated in older persons and in women...

..In particular, arrhythmias are common. CONCLUSION: The spectrum of adult CHD in Europe emerging from this survey is one of a predominantly young population with substantial morbidity but relatively low mortality in a 5 year period...

..To investigate the age at menarche, the prevalence of menstrual cycle (interval) disorders, and determinants in women with congenital heart disease (CHD)...

..Therefore, for most renal transplant patients tacrolimus will be the drug of choice when long-term treatment with a calcineurin inhibitor is indicated...

..Data on non-cardiac complications are limited, and this information is crucial for prenatal counselling and perinatal care. The aim of this study was to present the maternal and perinatal outcome of pregnancy in women with congenital AS...

..The offspring mortality was high throughout the spectrum and was related to the relatively high rate of premature delivery and recurrence of CHD...

..To investigate the magnitude and determinants of risk during pregnancy in female patients with balanced AVSD...

..To investigate outcome of pregnancy and fertility in women with double outlet right ventricle (DORV)...